Within the scope of TUBITAK 4008 “Inclusive Community Practices Support Program for Individuals with Special Needs”, the comprehensive project for children with Angelman Syndrome (AS) and their families started in partnership with Manisa Celal Bayar, Tekirdağ Namik Kemal and Health Sciences Universities, Yunusemre District Directorate of National Education, Provincial Directorate of Family and Social Services, Ankara Etlik City Hospital, Angelman Turkey Community and Angelman Syndrome Association.

The new project, implemented within the scope of TUBITAK 4008 “Inclusive Community Applications Support Program for Individuals with Special Needs”, aims to improve the quality of life of children with Angelman Syndrome (AS), a rare genetic disease, and the individuals serving these children.

Angelman Syndrome is defined as a genetic disorder characterized by developmental delay, speech impairment, movement and balance problems, and sometimes seizures. This rare disease is unknown to most people.

The main objectives of the project include providing original methods, materials and content to improve the cognitive, social, visual and motor skills of individuals with AS, while scientific support will also be provided to parents and caregivers of individuals with AS.

Within the scope of the seven-day program to be held at Manisa Celal Bayar University Faculty of Medicine, trainings that support the independent and active life of individuals with AS and facilitate their participation in physical and social environments will be organized. The trainings will be given by experts in the fields of neurology, genetics, special education, psychiatry, nutrition, sports and physiotherapy.

Participants will learn about the latest research and treatment methods for Angelman Syndrome and gain awareness on developing strategies for individuals with AS. The project aims to raise awareness about AS and increase the support offered to these individuals.

Speaking at the opening ceremony of the project, Manisa Celal Bayar University Rector Prof. Dr. Rana Kibar said, “As you know, Angelman Syndrome is an important neurological disorder that affects children and their families. It is the common responsibility of all of us to make the lives of these special children easier and to help them maximize their potential.

It is with this sense of responsibility that we launched the “Angelman Syndrome in Children: Sensiz AS'la Project” will fill an important gap in this field. Within the scope of our project, both scientific studies will be carried out for the diagnosis and treatment of this disease and social projects will be implemented to improve the quality of life of our children and their families.” ”As we take firm steps towards a future without barriers, our university, which adopts the principle of equality and inclusiveness in all areas of life, will continue to sign new projects.”